KIDNEEDS is a not-for-profit organization dedicated to finding a cure for the Dense Deposit Disease (DDD), an ultra-rare complement-mediated renal disease. KIDNEEDS funds research focused on this disease.
The Renal Complementopathy (ReCom) Database is an online resource for physicians to upload clinical and pathological data on patients with C3 Glomerulopathies (Dense Deposit Disease and C3 Glomerulonephritis) and patients with Atypical Hemolytic Uremic Syndrome (complement-mediated HUS). Data are reviewed by clinicians and scientists at the MORL weekly Renal Group meeting to identify persons who may qualify for research studies
The Database of Complement Gene Variants is a great resource for researchers, healthcare providers and patients involved in atypical Hemolytic Uremic Syndrome and C3 glomerulonephritis.
The aHUS Foundation is a resource for patients and healthcare providers to share information and resources on atypical hemolytic uremic syndrome, and to promote a better understanding of this rare complement-mediated renal disease.