KIDNEEDS is a not-for-profit organization dedicated to finding a cure for the Dense Deposit Disease (DDD), an ultra-rare complement-mediated renal disease. KIDNEEDS funds research focused on this disease.
The MPGN Database is an epidemiological database that collects detailed information on persons with DDD and Membranoproliferative Glomerulonephritis Types I and III.
The Renal Complementopathy (ReCom) Database is an online resource for physicians to upload clinical and pathological data on patients with C3 Glomerulopathies (Dense Deposit Disease and C3 Glomerulonephritis) and patients with Atypical Hemolytic Uremic Syndrome (complement-mediated HUS). Data are reviewed by clinicians and scientists at the MORL weekly Renal Group meeting to identify persons who may qualify for research studies
The Foundation for Children with Atypical HUS is a resource for patients and healthcare providers to share information and resources on atypical hemolytic uremic syndrome, and to promote a better understanding of this rare complement-mediated renal disease.
The FH aHUS Mutation Database is a tool for researchers studying Hemolytic Uremic Syndrome, Membranoproliferative Glomerulonephritis and Age-Related Macular Degeneration. Mutations in CFH, CFI and MCP are included in this database.